Evening update

We retuned home from the hospital about an hour ago. It was definately a L-O-N-G day. After being told the surgery would be at 1:30, it kept getting pushed back and pushed back. She was taken to the operating room around 4:15, but the surgery didn’t start until about 5:30. I have to wonder what was going on back there. It only took about an hour all totalled and she was out of recovery and back to her room around 8:30.

Her neurosurgeon did come and talk to us after he was done. It turns out that the tube in the neck was not blocked. It shunt device itself in was clogged with “brain matter.” Yeah I freaked out when I heard that. It turns out the the pseudotumor cerebi conditon causes you to have very small brain spaces (called ventricles). So at some point in time when her shunt was adjusted the brain collapsed around the tube and a bit of it was drawn into the shunt devise. I have been assured that one it did not hurt and two it will not affect Liz at all now or in the future.

The surgeon replaced and repositioned the catheter in the brain so it is in a slightly larger space. He replaced both parts of the shunt devices. He intends to talk with the manufacturer to see if there was mechanical failure too since the valve portion of the shunt also was having issues.

They did not have to do anything to the tube in the vein, so that was a good thing. The bad thing is they had to shave off her hair again. I know she it truly bummed about that, but at least we know her hair grows fast.

I spoke to her just a few minutes ago. She has had her post surgery CT scan already. The doctor mentioned if all goes well she may return home tomorrow. I may have to fight to have her in there another day, she is experiencing a lot of naseau right now and I don’t want to try and bring her home if she is having dealing with it. So tomorrow we shall see.

I hope you all had a wonderful day.

A married woman must often leave God at the altar in order to find Him in her housework ~~St. Francis of Rome

We are off to the hospital

Richard and I are heading down to the hospital. Liz’s surgery is now scheduled for 1:30 PM. I am afraid they are doing more than a shunt revision. She called and told me that they have done a CT scan with markers. They did this in February when they originally placed the shunt. Earlier this month they just revised the tubing and did not do this particular test. I hope to speak to the neurosurgeon soon to find out what is going to happen.

I will update later when I am able.

A married woman must often leave God at the altar in order to find Him in her housework ~~St. Francis of Rome

Quick Update

Today was a quiet one for Liz. With the drain in her back there is not much she can do. The drain has not been draining much and no one can tell me if that is good or bad. She is have a horrible headache and feeling sick to her stomach, so I would have to say that it is not good. I have been dealing with the neurosurgery residents since her doctor is off for the weekend.

I did go into mama bear mode this evening and get her pain medication upped and got her zofran for her naseau. When I left, the pain was in a managable level and the naseau was under control. I also had the neurosurgery resident paged to come down to the room to make sure the drain was working. It is working, but I have to wonder if something else is going on with Liz.

Tomorrow will probably be a repeat of today for her. I was informed that her surgery was scheduled for 3PM on Monday (as of now, we do deal with Hopkins time so who really knows!)

A married woman must often leave God at the altar in order to find Him in her housework ~~St. Francis of Rome

Quick Update on Liz

The current shunt is blocked somewhere in the tubing in the vein, possibly a clot. A temporary lumbar drain was placed until they can do the surgery on Monday afternoon. The procedure to place the drain went well, but once the lidacaine wore off she was in a lot of pain. When I left the hospital around midnight to come home to sleep, they were just starting to get a handle on the pain.

A married woman must often leave God at the altar in order to find Him in her housework ~~St. Francis of Rome

Oh NO!

Here we go again. Liz is back at Hopkins. It looks like the shunt may be blocked (again). She started with horrible heacaches and naseau yeserday. Then she conplained about vision getting cloudy. So we headed off the ER. They admitted her last night and she is having a bunch of tests today to pinpoint the issue.

Prayers are appreciated to find out what is going and that her sight returns to normal.

A married woman must often leave God at the altar in order to find Him in her housework ~~St. Francis of Rome

Summer Vacation — Day 8

Another busy day at the zoo. Liz had a doctor’s appointmnet with a doctor that the Social Security Administration said she had to see to prove she was disabled. I told the SSA this doctor is an internist, how can she tell all the complexities of the situation. (Liz is seeing the area specialists at Wilmar Eye Clinic. Number two eye center in the nation). The SSA told me it would be a very detailed exam. We were there 5 minutes. The doctor said “I am not an eye doctor, I will tell them to go back to Wilmar.” Your government and mine at work people.

Once we were done with the appointment, I took Liz to BJs to talk to the Verizon Wireless man there. She needed a new phone, because with her vision loss her current phone was almost impossible for her to use. Luckily we had an upgrade on the account so we were able to get her a low vision phone. Another thing I will need to fight. If a person loses their site, Verizon should give you that first phone without care to your upgrade status. After that then let you use upgrades after that. It isn’t like she asked for this to happen. So I will be making some phone calls later on this week to get an upgrade returned to us.

Oh the new dryer was here and functional by 2:30 this afternoon. The gentleman who delivered it were courteous and respectful. Imagine that. So I was able to get my laundry done this afternoon too. A great big positive for me. 🙂

I hope you had a wonderful day too!

A married woman must often leave God at the altar in order to find Him in her housework ~~St. Francis of Rome

Summer Vacation — Day 7

Well today was one of those days. The dryer has been acting up, well it had a seizure and died tonight. Now this dryer cost of all of $300. When I called the repair place and found out it would cost us $100 just to have someone come out and look, Richard and I decided to go get another dryer. We headed up to the new store in town, HHGregg and found a large, cheap one. It is being delivered tomorrow.

Other than that we started our new summer schedule. Douglas, Becky and Emma have started their summer work. They found it takes all of an hour to do, and they had fun. Plus I added in summer writing assignments. Once the cub scout camp and Douglas’s boy scout camp is over next week, I am going to start on a spelling curriculum with them. I have mostly poor spellers so I am hoping this will help everyone. (Maybe I should have Richard sit in on it too. 😀 )

So overall a wonderful day, except for the dryer going belly up.

I hope you all enjoyed your day too!

A married woman must often leave God at the altar in order to find Him in her housework ~~St. Francis of Rome

Summer Vacation — Day 6

After a rough night with Patrick. (He couldn’t sleep, too excited about day camp), We had another laid back,low key day here. Richard has Amanda and Patrick at the Cub Scout Day Camp. So far so good there. I am sure I will have more to post tomorrow about that.

Today the ones left behind and I had a couple of rip roaring games of Uno before lunch. The girls just chilled out and watched Dora, which is one of their favorite shows, while we played. After lunch we all hopped in the van and headed up to Walmart for a few things. I haven’t taken that many children out to the store in a while so it was interesting the comments that were over heard. Of course the girls didn’t have a nap and right now Abby is sleeping in the rocking chair. Douglas and the girls are out in the pool and Liz is upstairs reading. She is out of the pool for another week because of her surgery.

In an hour or so I am heading out to meet with the ladies from next years PTA. We are going to be planning for the next school year. We decided to treat ourselves and head to Panara for a working dinner meeting.

The pictures below are Abby, Marian, and Maggie. And then Emma, Becky and Douglas in pool.

A married woman must often leave God at the altar in order to find Him in her housework ~~St. Francis of Rome

Summer Vacation — Day 5

First of all Happy Father’s Day to all the fathers out there.

Today was very low key for us. I spent the day continuing the big clean around the house. The children rebelled and lost pool privileges today. I just love being a mean mom at times. But the boys room was complete and the big girls room is mostly done. I was able to get the laundry area of the basement and our bedroom completed. The kitchen pantry will be done tomorrow, I just ran out of time since it was set up day for the Cub Scout Day Camp this evening and I wanted to feed the family dinner first.

Richard took Amanda and the middles to set up the site. They were lucky and the den’s location is at the top end of the camp site, makes getting to it and from it much easier, usually they are the back end of the camp site so that adds time to the day.

Tomorrow Richard, Patrick and Mandy start their week long Cubs Through time adventure. I am sure they will enjoy it, especially knowing that its their last year there. I will work on the pantry and then work with Liz and finish up the big girls room. Once those are completed, the Big Clean will be done for the top two floors. Then onto the rest of the basement. I will need to work with Amanda to finish that up since her bedroom is in part of the basement, so that might be this weekend since she is at the Cub Scout Camp.

I hope you all had a wonderful and blessed Sunday.

A married woman must often leave God at the altar in order to find Him in her housework ~~St. Francis of Rome

Summer Vacation — Day 4

We have just returned from a visit with my mom, dad and brother. The children had a wonderful time visiting with Nana and Uncle Buddy. Then we went to visit dad at the rehab center. They put us in the large lounge to visit. Everyone had a great time.

After the visit we went back to mom’s for dinner and then headed home. Right now all the younger children are bathed and in bed. The older two are heading that way.

Even though tomorrow is Father’s Day, we are going to be working on the Big Clean. I hope to get the remaining three items on the list done so the upper two levels of the home are done.

Richard, Mandy, Patrick and Douglas will be heading out tomorrow evening to head to the Cub Scout Day Camp Area. They will be setting up for the week long camp. Patrick is looking forward to his last year at the camp. Richard is looking forward to the last year.

I hope you all had a wonderful Saturday!

A married woman must often leave God at the altar in order to find Him in her housework ~~St. Francis of Rome