Thursday Liz had an appointment with the neurologist to try and get her migraines under control. With Idiopathic Intracranial Hypertension (IIH) migraines can be a part of the condition. However, Liz has been suffering with daily headaches for over a year. Some days she spends the day in bed because the pain is that horrible. The first neurologist she saw, while a “headache” doctor, really had no experience with IIH and we felt like we were wasting time seeing him.
After her hospitalization in December, she was finally able to get an appointment with THE neurologist at Hopkins that deals with IIH. He reviewed all of her records and her headache history. He is not 100 percent sure that her shunt is draining properly. The patency test in December showed the shunt to be drainint at top level of normal, so he was concerned that it might not be draining properly.
He changed one of her medicines back to diamox to see if that helps control the level of spinal fluid and thus the pressure and the headaches. If this doesn’t work, we are looking at another couple of days in the hospital for pressure monitoring (again). Based on those results, Liz could be looking at surgery (again) in the near future to replace the shunt hardware with something that will provide more control for fluid drainage.
In addition to the medicine change, we are going to try the Low Tyramine Headache Diet to see if there are any food triggers which are contributing to the migraines. Since there is a family history of migraines, he figured this was another tool in the arsenal we should try.
Trying to figure this diet out is going to be very interesting, but it could turn out to be blessing in disguise. Liz cannot have chocolate, caffeine, artificial sweeteners, fresh made yeast products, aged cheeses, any type of processed meats, fermented products, any nitrates/nitrites, limit citrus fruits to 1/2 cup per day, MSG, or Vegemite (THAT one won’t be so hard to avoid). We also need to limit or eliminate as many additives and preservatives as we can.
Overall this where I have been moving the family’s diet anyway, this just gives me the push and motivation to get us totally switched over as soon as I can.
I hope you all have a wonderful rest of your weekend, while I try to figure out a new menu plan for the family which won’t force me to fix an entirely different meal for Liz at every meal.
A married woman must often leave God at the altar in order to find Him in her housework ~~St. Francis of Rome